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This page is dedicated to those who have lost their battle with pancreatic cancer.  If you would like to add your story, please e-mail it to Sue for publication, or fill out the form below and submit it there.

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My life changed forever on July 3, 2006.  That day my husband was diagnosed with pancreatic cancer.  Prior to that day I couldn’t  have been happier.  We had been married for thirty-three years.  We were not blessed with children, but  had a relationship that everyone strives for.  Certainly, it had its ups and downs, but we were soul mates and best friends.  We were content to be alone, happiest just walking our dogs, cooking on the grill, or watching a movie while sitting near a warm fire.  Tom was the most selfless, generous person I have ever known.  Friends called  him Uncle Tommy because he took care of everyone, including me.  He helped me with my predilection towards worry.  He lived life to its fullest and encouraged me to do the same.  He always said, “They can’t take yesterday from you, but you may not have a tomorrow.”  I thought those words applied to someone else…not to us.  I couldn’t have been more wrong.  That day I truly went into shock:  I wanted to die.  With the help of  my family and friends I was able  to get through. I was able to bring Tom home from the hospital and care for him until he died in our bed on October 28th,  2006.

Now the phrase “ Life Altering” was something I understood.  I had lost over 30 pounds:  my hair and nails had stopped growing.  It didn’t seem to matter.  I knew that to survive I had to give to others so I worked with children in a kindergarten class.  I mucked out stalls at the Animal Rescue League, and volunteered at Habitat For Humanity.  All three gave me peace and respite from reality.  During this past year I have found a strength that I didn’t know I  had possessed.  Instead of being afraid of trying something new and failing I started to think about what I could do to help.  I began to read about Pancreatic Cancer.

Did you know that pancreatic cancer is the deadliest of all major cancers?  It kills 97% of people who are afflicted within 5 years, half within 6 months.  There is no prevention, early diagnosis, or cure.  By the time you get that pain in your side it’s usually too late.  This disease kills 33,000 people a year in the United States alone.

My first fundraiser to fight this disease was a golf tournament in Tom’s honor in October, 2007.  With the help of his friends we were able to donate $25,000 to Lustgarten, the largest private foundation for pancreatic cancer research in the United States.  Two weeks after the tournament, I found another way to fund research.  You see, I love to wear hats.  When I wore them out with Tom, so many people complimented me on my hats that it became a joke between the two of us.  Almost a year to the day after I had lost my husband, I wore my sparkle hat again.  Three separate women stopped me to say the often heard phrase "Luv Your Hat!"  I smiled to myself and realized that this was it!  I would sell hats and donate a portion of each sale to pancreatic cancer research. It's scary and exciting at the same time, but for such a good cause.  Please help me by buying a beautiful hat.  Together  we may help to save some precious lives in the future.

Sincerely,

Sue O’Neil
 

   
 

I remember Jimmy Carter's television awareness campaign about pancreatic cancer, but I never knew anybody who had the disease.

Then, after Christmas of 1998, my Dad experienced a strange itching all over his body and his skin color seemed to darken.  His doctor sent him for a CAT scan and I remember taking him on a Saturday, which I thought was unusual and a bit scary, like it was an emergency.  Little did I know that it would be the worst.  They found a growth on his pancreas which was pushing on the bile duct that had caused the itching and color change of his skin.

Over the next week I read more on the Internet about pancreatic cancer than I ever thought I would.  I didn't like the information I was reading and somehow hoped it was WRONG or maybe my father's case would be different.

The end of January '99,  my father was a candidate for and chose  to have a Whipple, which is an extremely difficult operation, where your pancreas is removed.  It took two surgeons relieving each other over eight hours to perform the operation.  It bought my father some time, but it was a long, difficult recuperation.  He underwent chemo and tolerated it well.  He never complained.  That's the kind of guy he was.  We got to celebrate his 80th birthday and it was truly special with lots of family coming together for the event.

He lived two and a half years after his initial diagnosis and back in 2001,  that was considered a long time.

A week after my father passed, I found out that my neighbor's father passed away from pancreatic cancer only three weeks after his initial diagnosis. And, in 2005, I lost a sister-in-law to this deadly disease.  It's a disease that needs to be researched and studied and hopefully someday a cure will be found.

I'm glad LuvYourHat.com was created and I hope it will bring attention to the disease and hopefully money toward research where it is desperately needed.

M L S

   
 
My life, too, changed on St. Patrick's Day 2006. My mom was diagnosed with pancreatic cancer.  She was only 62. We went to see her oncologist who told us that chemo would kill her quicker than the cancer because she was so cachectic.

At first they told us she might only make it a couple of weeks because the cancer was invading her bile duct causing her bilirubin to increase to a dangerous level. She died on May 25, 2006. I was so afraid to sleep during those months when she was still alive because I knew my time was limited and I was afraid to miss a moment with her. It is still surreal to me. I miss her so much, especially today, on Mother's Day. She was a wonderful, loving, caring person.

Once we were sitting in the car shortly after her diagnosis. I was crying and telling her how sorry I was for every time we ever had harsh words, or disagreed. She was crying, too. After I shared all of my love and pride and in her she turned to me and through tears she said, "I am sorry, too, but I tell ya, I am not sorry for one time I beat your ass!". We both started laughing and walked in the house arm in arm. She was my strength, my source of unconditional love, inspiration and hope. She taught me about faith and more than I could ever put into words. I didn't realize how prevalent pancreatic cancer is until recently. I would love to find something that I could do for my mom to help raise money for pancreatic cancer research. Thank you for sharing your story-it has made a difference in my quest to make a difference because of all that my mom has brought to my life and the lives of those around her.

D A

 


My Dad, Earl, called me in November of 2004, telling me he had pains in his stomach, and it was not going away. He lived 80 miles north of me, near the Wisconsin border in Illinois. I asked him to come to Chicago and we would get him tested at a University in downtown Chicago, but, he wanted to stay in the Rockford Illinois area which is where my Parents retired. One hospital sent him
home with an ennema. Still thinking about that one.  Finally, a group of gastro Doctors kept testing and testing. Finally, in August of 2005, after he lost all his muscle and weight, they found a 2 x 4cm tumor on his pancreas wrapped around his main artery…. The first hospital found a 1 cm tumor in April of 2005, and sent him home with an ennema.

He decided to fight with Gemcetibine chemo for a couple of months, about a month before he passed away they sent him home. He outlived every Doctor’s
expectation. He was a very strong man. My father had built elevators for a living. He had worked on almost every high rise in downtown Chicago. What a sad way to die. My Dad use to carry iron elevator rails by himself. All his fellow coworkers told me he was the hardest working man they knew. He survived raising 6 kids, and losing his beloved wife a few years earlier. So, lets find an
early detection for this horrific cancer.

G W

 
In Aug 2001 my husband Mike was diagnosed with pancreatic cancer. He had a whipple operation, containing the cancer within the parts of organs removed.  He is now coming up to his 7th year.  He did not have any chemo or radiation treatment.  His health is  not as good as we would like it to be but he is alive and that is what matters. We have really been Blessed in his recovery as we are aware the recovery rate is very low even up to 5 years.

We are sorry of your loss. I think you are brave to do what you are doing now.

C P

 

"Please accept my sympathies" is such an inadequate statement for the wishes and prayers we want to offer to people who have
suffered losses. On the other hand, it is absolutely perfect in its simplicity and honesty. I can state this because my husband died of pancreatic cancer November 2, 2006 after being diagnosed June 14, 2006.

How wonderful that you are channeling your grief into fighting this insidious disease. Your hats are marvelous! You state that the net proceeds are given to the Lustgarten Foundation. I would like to know the amount at this time (I'm sure it is variable due to changing costs of material and labor.)

Our family has been impacted by cancer over and over again. We are sort of the walking sign board for cancer losses - breast, lung, multiple myeloma, pancreatic.  Although we donate to the individual research groups, I have become very active with the American Cancer Society which is devoted to all cancer research, public education, government advocacy and monetary and emotional support for cancer patients and their families. One of the major fundraisers is the Cattle Baron Ball which began in Dallas and now has spread to quite a few cities including mine, Akron, Ohio.  This will be our third year.  I would dearly love to wear your hat to the event (Stetsons and Stilettos is our
theme this year.)

I look forward to hearing from you. Good luck in your continuing endeavors.

M T


I lost my mother to pancreatic cancer 8 years ago today. We were best friends, and I miss her still every single day. Please give a white rose to someone you love, in memory of my mother, Mary.

Thanks and God Bless.

C J


Who was Rick "Lyons"?                                          

Rick Lyons was a man that touched many lives in a variety of ways. Rick lived a full life from serving in the U.S. Army during the Vietnam War to being a fitness instructor at Peak Fitness. In January 2007 Rick, as he always did, thought of a new way to make a difference in other's lives by creating the very first Indoor Century Ride. The ride would last 5 hours averaging 20 miles an hour indoors to make up this 100 mile Century Ride at a cost of $100 per team. All proceeds were to be given to the Juvenile Diabetes Foundation.  Of course this was a huge undertaking but he immediately began the work required to make it happen. In February of 2006, Rick became ill with what doctors suspected was an ulcer. With no relief from a few days of medication, his doctor instructed him to have more blood work done on Monday, February 26, 2007.   But he did not make that appointment. At midnight on February 25th, his wife Mary took him to the hospital because he could no longer tolerate the feeling of fullness and discomfort that rendered him unable to eat or sleep. It was that morning that the doctors informed Rick and Mary that he had a mass on his pancreas, spots on his liver, and most likely it was pancreatic cancer. Three days later his diagnosis was confirmed and doctors left him and his family with little hope. The news of Rick's condition spread rapidly. The 150 visitors that rushed to Rick's side in just the first two days were overwhelming. Even though Rick received this devastating news, he continued to touch lives by ministering to his many visitors and caretakers, continuing the Lord's work. As I visited one evening, he asked his precious wife Mary to make sure she wrote a check for the ride that he had worked so hard to create. On Friday, March 16, 2007 Rick went home to be with the Lord. In his memory, even though very difficult, the ride went on as planned the very next day. This year we decided to make a few changes to the ride in his memory.  All proceeds will be given to The Lustgarten Foundation for Pancreatic cancer.


M S


First of all, I want to extend my prayers and heartfelt sympathy for everyone who has lost a loved one to this horrific form of cancer.  My loss was some years ago but it still brings tears to my eyes when I relive what my beloved father went through. My dad was a handyman, he could do it all. He was intelligent and funny. He always had a joke to share and he had a twinkle in his cornflower blue eyes that made me wonder what he was like when my grandparents were raising him. In July of 1992, my father wasn't feeling quite right and started to lose weight without really trying. His appetite wasn't quite what it used to be and he knew deep down inside that something was wrong. When I saw my father in October or November of that year, I was shocked to see how much weight he had lost. He told me they were running tests but no one seemed to know what was going on with him. In January, 1993, my father shared with us that they finally had a diagnosis and it was pancreatic cancer. He told us they were giving him 2 years with chemo and radiation. I visited my Dad in March and again was dismayed at how thin and weak he was. But he continued to go for treatments. On May 26, 1993, my father's heart could take no more and he joined the Lord in Heaven.  To say it was difficult to say goodbye doesn't even begin to express the loss that I, my sisters and brother felt but we felt we needed to be strong for my mother.

I am so happy to see that this organization exists, I heard about it from a nurse I work with.  My only hope and prayer is that this research will also include natural cures as well as pharmaceutical. I know there is no money in herbal or natural remedies, but after going through a loss and watching someone suffer, I honestly don't care where the cure comes from. I feel it is sinful to withhold information because it doesn't bring in revenue. And so I will support this organization by purchasing one or several of the beautiful hats Sue is selling and I will pray that the right thing will be done and someday we will all be free from the pain and suffering of those we love as they journey with this dreadful disease. God Bless.

LH


I also lost my mom it will be 5 years on October 14th.  I so wish that she was alive right now, I would give my right arm. To watch some go through what she did was so so sad.  But I guess it is true, ONLY THE GOOD DIE YOUNG.

I love you mother and god bless you all.

J B

 

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