This page is dedicated to those who have lost their battle with pancreatic
cancer. If you would like to add your story, please
e-mail it to Sue
for publication, or fill out the form below and submit it there.
NEWS
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Our
Stories
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My life changed forever on July 3, 2006. That day my husband was
diagnosed with pancreatic cancer. Prior to that day I couldn’t
have been happier. We had been married for thirty-three years.
We were not blessed with children, but had a relationship that
everyone strives for. Certainly, it had its ups and downs, but
we were soul mates and best friends. We were content to be
alone, happiest just walking our dogs, cooking on the grill, or
watching a movie while sitting near a warm fire. Tom was the
most selfless, generous person I have ever known. Friends called
him Uncle Tommy because he took care of everyone, including me.
He helped me with my predilection towards worry. He lived life
to its fullest and encouraged me to do the same. He always said,
“They can’t take yesterday from you, but you may not have a tomorrow.”
I thought those words applied to someone else…not to us. I
couldn’t have been more wrong. That day I truly went into shock:
I wanted to die. With the help of my family and friends I
was able to get through. I was able to bring Tom home from the
hospital and care for him until he died in our bed on October 28th,
2006.
Now the phrase “ Life Altering” was something I understood. I
had lost over 30 pounds: my hair and nails had stopped growing.
It didn’t seem to matter. I knew that to survive I had to give
to others so I worked with children in a kindergarten class. I
mucked out stalls at the Animal Rescue League, and volunteered at
Habitat For Humanity. All three gave me peace and respite from
reality. During this past year I have found a strength that I
didn’t know I had possessed. Instead of being afraid of
trying something new and failing I started to think about what I could
do to help. I began to read about Pancreatic Cancer.
Did you know that pancreatic cancer is the deadliest of all major
cancers? It kills 97% of people who are afflicted within 5
years, half within 6 months. There is no prevention, early
diagnosis, or cure. By the time you get that pain in your side
it’s usually too late. This disease kills 33,000 people a year
in the United States alone.
My first fundraiser to fight this disease was a golf tournament in
Tom’s honor in October, 2007. With the help of his friends we
were able to donate $25,000 to Lustgarten, the largest private
foundation for pancreatic cancer research in the United States. Two weeks after the tournament, I found
another way to fund research. You see, I love to wear hats. When I
wore them out with Tom, so many people complimented me on my hats that
it became a joke between the two of us. Almost a year to the day
after I had lost my husband, I wore my sparkle hat again. Three
separate women stopped me to say the often heard phrase "Luv Your
Hat!" I smiled to myself and realized that this was it! I would sell
hats and donate a portion of each sale to pancreatic cancer
research. It's scary and exciting at the same time, but for such a
good cause. Please help me by buying a beautiful hat. Together
we may help to save some precious lives in the future.
Sincerely,
Sue O’Neil
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I remember Jimmy Carter's
television awareness campaign about pancreatic cancer, but I never
knew anybody who had the disease.
Then, after Christmas of 1998, my Dad experienced a strange itching
all over his body and his skin color seemed to darken. His doctor sent him for
a CAT scan and I remember taking him on a Saturday, which I thought
was unusual and a bit scary, like it was an emergency. Little
did I know that it would be the worst. They found a growth on
his pancreas which was pushing on the bile duct that had caused the
itching and color change of his skin.
Over the next week I read more on the Internet about pancreatic
cancer than I ever thought I would. I didn't like the
information I was reading and somehow hoped it was WRONG or maybe my
father's case would be different.
The end of January '99, my father
was a candidate for and chose to have a
Whipple, which is an extremely difficult operation, where your
pancreas is removed. It took two surgeons relieving each other
over eight hours to perform the operation. It bought my father
some time, but it was a long, difficult recuperation. He
underwent chemo and tolerated it well. He never complained.
That's the kind of guy he was. We got to celebrate his 80th
birthday and it was truly special with lots of family coming together
for the event.
He lived two and a half years after his initial diagnosis and back in
2001, that was considered a long time.
A week after my father passed, I found out that my neighbor's father
passed away from pancreatic cancer only three weeks after his initial
diagnosis. And, in 2005, I lost a sister-in-law to this deadly
disease. It's a disease that needs to be researched and studied
and hopefully someday a cure will be found.
I'm glad LuvYourHat.com was created and I hope it will bring attention
to the disease and hopefully money toward research where it is
desperately needed. M L S |
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| My life, too, changed on St.
Patrick's Day 2006. My mom was diagnosed with pancreatic cancer.
She was only 62. We went to see her oncologist who told us that
chemo would kill her quicker than the cancer because she was so
cachectic. At first they
told us she might only make it a couple of weeks because the
cancer was invading her bile duct causing her bilirubin to
increase to a dangerous level. She died on May 25, 2006. I was
so afraid to sleep during those months when she was still alive
because I knew my time was limited and I was afraid to miss a
moment with her. It is still surreal to me. I miss her so much,
especially today, on Mother's Day. She was a wonderful, loving,
caring person.
Once we were sitting in the car
shortly after her diagnosis. I was crying and telling her how
sorry I was for every time we ever had harsh words, or
disagreed. She was crying, too. After I shared all of my love
and pride and in her she turned to me and through tears she
said, "I am sorry, too, but I tell ya, I am not sorry for one
time I beat your ass!". We both started laughing and walked in
the house arm in arm. She was my strength, my source of
unconditional love, inspiration and hope. She taught me about
faith and more than I could ever put into words. I didn't
realize how prevalent pancreatic cancer is until recently. I
would love to find something that I could do for my mom to help
raise money for pancreatic cancer research. Thank you for
sharing your story-it has made a difference in my quest to make
a difference because of all that my mom has brought to my life
and the lives of those around her.
D A |
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My Dad, Earl, called me in November of 2004, telling me he had
pains in his stomach, and it was not going away. He lived 80
miles north of me, near the Wisconsin border in Illinois. I
asked him to come to Chicago and we would get him tested at a
University in downtown Chicago, but, he wanted to stay in the
Rockford Illinois area which is where my Parents retired. One
hospital sent him
home with an ennema. Still thinking about that one.
Finally, a group of gastro Doctors kept testing and testing.
Finally, in August of 2005, after he lost all his muscle and
weight, they found a 2 x 4cm tumor on his pancreas wrapped
around his main artery…. The first hospital found a 1 cm tumor
in April of 2005, and sent him home with an ennema.
He decided to
fight with Gemcetibine chemo for a couple of months, about a
month before he passed away they sent him home. He outlived
every Doctor’s
expectation. He was a very strong man. My father had built
elevators for a living. He had worked on almost every high rise
in downtown Chicago. What a sad way to die. My Dad use to carry
iron elevator rails by himself. All his fellow coworkers told me
he was the hardest working man they knew. He survived raising 6
kids, and losing his beloved wife a few years earlier. So, lets
find an
early detection for this horrific cancer.
G W |
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| In Aug 2001 my husband Mike
was diagnosed with pancreatic cancer. He had a whipple
operation, containing the cancer within the parts of organs
removed. He is now coming up to his 7th year. He did not
have any chemo or radiation treatment. His health is
not as good as we would like it to be but he is alive and that
is what matters. We have really been Blessed in his recovery as
we are aware the recovery rate is very low even up to 5 years.
We are sorry of your loss. I
think you are brave to do what you are doing now.
C P |
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"Please accept my
sympathies" is such an inadequate statement for the wishes and
prayers we want to offer to people who have
suffered losses. On the other hand, it is absolutely perfect in
its simplicity and honesty. I can state this because my husband
died of pancreatic cancer November 2, 2006 after being diagnosed
June 14, 2006.
How wonderful that
you are channeling your grief into fighting this insidious
disease. Your hats are marvelous! You state that the net
proceeds are given to the Lustgarten Foundation. I would like to
know the amount at this time (I'm sure it is variable due to
changing costs of material and labor.)
Our family has
been impacted by cancer over and over again. We are sort of the
walking sign board for cancer losses - breast, lung, multiple
myeloma, pancreatic. Although we donate to the individual
research groups, I have become very active with the American
Cancer Society which is devoted to all cancer research, public
education, government advocacy and monetary and emotional
support for cancer patients and their families. One of the major
fundraisers is the Cattle Baron Ball which began in Dallas and
now has spread to quite a few cities including mine, Akron,
Ohio. This will be our third year. I would dearly
love to wear your hat to the event (Stetsons and Stilettos is
our
theme this year.)
I look forward to
hearing from you. Good luck in your continuing endeavors.
M T |
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I lost my mother
to pancreatic cancer 8 years ago today. We were best friends,
and I miss her still every single day. Please give a white rose
to someone you love, in memory of my mother, Mary.
Thanks and God
Bless.
C J |
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Who was Rick "Lyons"?
Rick Lyons was a man that touched many lives in a variety of
ways. Rick lived a full life from serving in the U.S. Army
during the Vietnam War to being a fitness instructor at Peak
Fitness. In January 2007 Rick, as he always did, thought of a
new way to make a difference in other's lives by creating the
very first Indoor Century Ride. The ride would last 5 hours
averaging 20 miles an hour indoors to make up this 100 mile
Century Ride at a cost of $100 per team. All proceeds were to be
given to the Juvenile Diabetes Foundation. Of course this
was a huge undertaking but he immediately began the work
required to make it happen. In February of 2006, Rick became ill
with what doctors suspected was an ulcer. With no relief from a
few days of medication, his doctor instructed him to have more
blood work done on Monday, February 26, 2007. But he
did not make that appointment. At midnight on February 25th, his
wife Mary took him to the hospital because he could no longer
tolerate the feeling of fullness and discomfort that rendered
him unable to eat or sleep. It was that morning that the doctors
informed Rick and Mary that he had a mass on his pancreas, spots
on his liver, and most likely it was pancreatic cancer. Three
days later his diagnosis was confirmed and doctors left him and
his family with little hope. The news of Rick's condition spread
rapidly. The 150 visitors that rushed to Rick's side in just the
first two days were overwhelming. Even though Rick received this
devastating news, he continued to touch lives by ministering to
his many visitors and caretakers, continuing the Lord's work. As
I visited one evening, he asked his precious wife Mary to make
sure she wrote a check for the ride that he had worked so hard
to create. On Friday, March 16, 2007 Rick went home to be with
the Lord. In his memory, even though very difficult, the ride
went on as planned the very next day. This year we decided to
make a few changes to the ride in his memory. All proceeds
will be given to The Lustgarten Foundation for Pancreatic
cancer.
M S
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| First of
all, I want to extend my prayers and heartfelt sympathy
for everyone who has lost a loved one to this horrific
form of cancer. My loss was some years ago but it
still brings tears to my eyes when I relive what my
beloved father went through. My dad was a handyman, he
could do it all. He was intelligent and funny. He always
had a joke to share and he had a twinkle in his cornflower
blue eyes that made me wonder what he was like when my
grandparents were raising him. In July of 1992, my father
wasn't feeling quite right and started to lose weight
without really trying. His appetite wasn't quite what it
used to be and he knew deep down inside that something was
wrong. When I saw my father in October or November of that
year, I was shocked to see how much weight he had lost. He
told me they were running tests but no one seemed to know
what was going on with him. In January, 1993, my father
shared with us that they finally had a diagnosis and it
was pancreatic cancer. He told us they were giving him 2
years with chemo and radiation. I visited my Dad in March
and again was dismayed at how thin and weak he was. But he
continued to go for treatments. On May 26, 1993, my
father's heart could take no more and he joined the Lord
in Heaven. To say it was difficult to say goodbye doesn't
even begin to express the loss that I, my sisters and
brother felt but we felt we needed to be strong for my
mother.
I am so happy to see that
this organization exists, I heard about it from a nurse I
work with. My only hope and prayer is that this
research will also include natural cures as well as
pharmaceutical. I know there is no money in herbal or
natural remedies, but after going through a loss and
watching someone suffer, I honestly don't care where the
cure comes from. I feel it is sinful to withhold
information because it doesn't bring in revenue. And so I
will support this organization by purchasing one or
several of the beautiful hats Sue is selling and I will
pray that the right thing will be done and someday we will
all be free from the pain and suffering of those we love
as they journey with this dreadful disease. God Bless.
LH |
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| I also lost
my mom it will be 5 years on October 14th. I so wish
that she was alive right now, I would give my right arm.
To watch some go through what she did was so so sad. But
I guess it is true, ONLY THE GOOD DIE YOUNG.
I love you mother and god
bless you all.
J B |
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